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RI Publications

RI Publications

Discover publications arising from research led by Retina International, generating evidence to advance understanding of retinal conditions and improve outcomes.

2025

Geographic Atrophy

Prioritising the Burden of Geographic Atrophy and Treatment Expectations: A Modified Nominal Group Technique Study with International Patient-Led Organisations Read Here

Patient Experience Data (PED)

Valuing patients’ high unmet need to drive innovative therapies for inherited retinal degenerations: insights from the RIWC 2024 workshop on value Read Here

2024

Cost of Illness / AMD

Economic Burden of Late-Stage Age-Related Macular Degeneration in Bulgaria, Germany, and the US Read Here

Genetic Testing / PED

Genetic Testing Experiences of People Living with Inherited Retinal Degenerations: Results of a Global Survey Read Here

Genetic Testing / PED

The Landscape of Genomic Services for Inherited Retinal Degenerations (IRDs) Across Europe Read Here

2022

Cost of Illness / AMD

The socio-economic impact of age-related macular degeneration (AMD) in Bulgaria, Germany and USA A disease burden assessment of GA and nAMD Read Here

2020

Cost of Illness / IRD

IRDCOUNTS Read Here
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