Research & Innovation

Cost of Illness Studies

Our research explores how retinal conditions affect people, families, and society, looking at healthcare costs, employment and productivity, the impact on caregivers, quality of life, and the wider economic and social burden.

IRDCOUNTS - Cost of Illness Studies

IRDCOUNTS explores the real-world impact of inherited retinal diseases (IRDs) on individuals, families, caregivers, healthcare systems, and society.

The studies highlight the wider burden of IRDs, including well-being, employment, productivity, and support needs.

 

AMD Impact: Cost of Illness Study

The AMD Impact Study examined the socioeconomic impact of late-stage age-related macular degeneration (AMD), including both neovascular AMD and geographic atrophy.

The study explored:

  • Direct healthcare costs
  • Productivity impacts
  • Caregiver burden
  • Quality of life and well-being

Countries included:

  • United States
  • Germany
  • Bulgaria

Our research aims to

Strengthen patient involvement in research and development
Generate evidence on the impact of retinal conditions
Highlight unmet needs and priorities within the retinal community
Support innovation
in diagnosis, treatments,
and care
Inform healthcare policy and decision-making

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Discover publications, projects, and evidence shaping the future of retinal health. Learn how patients and communities can contribute to innovation.

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