Cost of Illness Studies
Our research explores how retinal conditions affect people, families, and society, looking at healthcare costs, employment and productivity, the impact on caregivers, quality of life, and the wider economic and social burden.
IRDCOUNTS - Cost of Illness Studies
IRDCOUNTS explores the real-world impact of inherited retinal diseases (IRDs) on individuals, families, caregivers, healthcare systems, and society.
The studies highlight the wider burden of IRDs, including well-being, employment, productivity, and support needs.


AMD Impact: Cost of Illness Study
The AMD Impact Study examined the socioeconomic impact of late-stage age-related macular degeneration (AMD), including both neovascular AMD and geographic atrophy.
The study explored:
- Direct healthcare costs
- Productivity impacts
- Caregiver burden
- Quality of life and well-being
Countries included:
- United States
- Germany
- Bulgaria
Our research aims to
Get Involved in Research
Discover publications, projects, and evidence shaping the future of retinal health. Learn how patients and communities can contribute to innovation.